Unmet needs of gynaecological cancer survivors: implications for developing community support services
Identifieur interne : 006D04 ( Main/Exploration ); précédent : 006D03; suivant : 006D05Unmet needs of gynaecological cancer survivors: implications for developing community support services
Auteurs : Vanessa Beesley [Australie] ; Elizabeth Eakin [Australie] ; Suzanne Steginga [Australie] ; Joanne Aitken [Australie] ; Jeff Dunn [Australie] ; Diana Battistutta [Australie]Source :
- Psycho‐Oncology [ 1057-9249 ] ; 2008-04.
Descripteurs français
- KwdFr :
- Accessibilité des services de santé, Activités de la vie quotidienne (psychologie), Adolescent, Adulte, Adulte d'âge moyen, Association thérapeutique (psychologie), Besoins et demandes de services de santé, Conseil en sexualité, Facteurs socioéconomiques, Femelle, Humains, Lymphoedème (psychologie), Population rurale, Post-cure (psychologie), Queensland, Recherche sur les services de santé, Rôle de malade, Services de santé communautaires, Soutien social, Sujet âgé, Tumeurs de l'appareil génital féminin (), Tumeurs de l'appareil génital féminin (psychologie), Évaluation de l'incapacité.
- MESH :
- psychologie : Activités de la vie quotidienne, Association thérapeutique, Lymphoedème, Post-cure, Tumeurs de l'appareil génital féminin.
- Accessibilité des services de santé, Adolescent, Adulte, Adulte d'âge moyen, Besoins et demandes de services de santé, Conseil en sexualité, Facteurs socioéconomiques, Femelle, Humains, Population rurale, Queensland, Recherche sur les services de santé, Rôle de malade, Services de santé communautaires, Soutien social, Sujet âgé, Tumeurs de l'appareil génital féminin, Évaluation de l'incapacité.
English descriptors
- KwdEn :
- Activities of Daily Living (psychology), Adolescent, Adult, Aftercare (psychology), Aged, Combined Modality Therapy (psychology), Community Health Services, Disability Evaluation, Female, Genital Neoplasms, Female (psychology), Genital Neoplasms, Female (therapy), Health Services Accessibility, Health Services Needs and Demand, Health Services Research, Humans, Lymphedema (psychology), Middle Aged, Queensland, Rural Population, Sex Counseling, Sick Role, Social Support, Socioeconomic Factors.
- MESH :
- geographic : Queensland.
- psychology : Activities of Daily Living, Aftercare, Combined Modality Therapy, Genital Neoplasms, Female, Lymphedema.
- therapy : Genital Neoplasms, Female.
- Adolescent, Adult, Aged, Community Health Services, Disability Evaluation, Female, Health Services Accessibility, Health Services Needs and Demand, Health Services Research, Humans, Middle Aged, Rural Population, Sex Counseling, Sick Role, Social Support, Socioeconomic Factors.
Abstract
After treatment completion, gynaecological cancer survivors may face long‐term challenges and late effects, specific to this disease. Available research on supportive care needs of women with gynaecological cancer is limited. This study aimed to determine the prevalence and correlates of unmet needs within a population of gynaecological cancer survivors. Eight hundred and two women participated in a population‐based mail survey in 2004 (56% response rate). The questionnaire included a validated instrument to assess 45 need items across multiple supportive care domains, and a range of measures to evaluate related correlates consistent with a social–ecological perspective. Forty‐three per cent of respondents reported having at least one moderate‐ or high‐level unmet need. The five highest included needing help with fear about the cancer spreading (17%), concerns about the worries of those close to them (15%), uncertainty about the future (14%), lack of energy/tiredness (14%), and not being able to do things they used to do (14%). Subgroups of women with higher odds of reporting ‘some’ unmet needs across multiple supportive care domains include those who, are not in remission, live with lymphoedema or are unable to work due to illness. Odds were also higher for women who had undergone more recent treatment, and who lived in rural or remote locations. Further assistance with the top specific concerns of gynaecological cancer survivors is recommended. Identified subgroups with higher needs are important targets for support. Copyright © 2007 John Wiley & Sons, Ltd.
Url:
DOI: 10.1002/pon.1249
Affiliations:
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Beesley</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Institute of Health and Biomedical Innovation, School of Public Health, Queensland University of Technology, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Cancer and Population Studies Group, Queensland Institute of Medical Research, PO Box Royal Brisbane Hospital, Herston, Qld 4029</wicri:regionArea><wicri:noRegion>Qld 4029</wicri:noRegion></affiliation></author><author><name sortKey="Eakin, Elizabeth" sort="Eakin, Elizabeth" uniqKey="Eakin E" first="Elizabeth" last="Eakin">Elizabeth Eakin</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Cancer Prevention Research Centre, School of Population Health, University of Queensland, 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unit="issue">4</biblScope><biblScope unit="page" from="392">392</biblScope><biblScope unit="page" to="400">400</biblScope><biblScope unit="page-count">9</biblScope><publisher>John Wiley & Sons, Ltd.</publisher><pubPlace>Chichester, UK</pubPlace><date type="published" when="2008-04">2008-04</date></imprint><idno type="ISSN">1057-9249</idno></series></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">1057-9249</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Activities of Daily Living (psychology)</term><term>Adolescent</term><term>Adult</term><term>Aftercare (psychology)</term><term>Aged</term><term>Combined Modality Therapy (psychology)</term><term>Community Health Services</term><term>Disability Evaluation</term><term>Female</term><term>Genital Neoplasms, Female (psychology)</term><term>Genital Neoplasms, Female (therapy)</term><term>Health Services Accessibility</term><term>Health Services Needs and Demand</term><term>Health Services Research</term><term>Humans</term><term>Lymphedema (psychology)</term><term>Middle Aged</term><term>Queensland</term><term>Rural Population</term><term>Sex Counseling</term><term>Sick Role</term><term>Social Support</term><term>Socioeconomic Factors</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Accessibilité des services de santé</term><term>Activités de la vie quotidienne (psychologie)</term><term>Adolescent</term><term>Adulte</term><term>Adulte d'âge moyen</term><term>Association thérapeutique (psychologie)</term><term>Besoins et demandes de services de santé</term><term>Conseil en sexualité</term><term>Facteurs socioéconomiques</term><term>Femelle</term><term>Humains</term><term>Lymphoedème (psychologie)</term><term>Population rurale</term><term>Post-cure (psychologie)</term><term>Queensland</term><term>Recherche sur les services de santé</term><term>Rôle de malade</term><term>Services de santé communautaires</term><term>Soutien social</term><term>Sujet âgé</term><term>Tumeurs de l'appareil génital féminin ()</term><term>Tumeurs de l'appareil génital féminin (psychologie)</term><term>Évaluation de l'incapacité</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Queensland</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Activités de la vie quotidienne</term><term>Association thérapeutique</term><term>Lymphoedème</term><term>Post-cure</term><term>Tumeurs de l'appareil génital féminin</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Activities of Daily Living</term><term>Aftercare</term><term>Combined Modality Therapy</term><term>Genital Neoplasms, Female</term><term>Lymphedema</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Genital Neoplasms, Female</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Adult</term><term>Aged</term><term>Community Health Services</term><term>Disability Evaluation</term><term>Female</term><term>Health Services Accessibility</term><term>Health Services Needs and Demand</term><term>Health Services Research</term><term>Humans</term><term>Middle Aged</term><term>Rural Population</term><term>Sex Counseling</term><term>Sick Role</term><term>Social Support</term><term>Socioeconomic Factors</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Accessibilité des services de santé</term><term>Adolescent</term><term>Adulte</term><term>Adulte d'âge moyen</term><term>Besoins et demandes de services de santé</term><term>Conseil en sexualité</term><term>Facteurs socioéconomiques</term><term>Femelle</term><term>Humains</term><term>Population rurale</term><term>Queensland</term><term>Recherche sur les services de santé</term><term>Rôle de malade</term><term>Services de santé communautaires</term><term>Soutien social</term><term>Sujet âgé</term><term>Tumeurs de l'appareil génital féminin</term><term>Évaluation de l'incapacité</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">After treatment completion, gynaecological cancer survivors may face long‐term challenges and late effects, specific to this disease. Available research on supportive care needs of women with gynaecological cancer is limited. This study aimed to determine the prevalence and correlates of unmet needs within a population of gynaecological cancer survivors. Eight hundred and two women participated in a population‐based mail survey in 2004 (56% response rate). The questionnaire included a validated instrument to assess 45 need items across multiple supportive care domains, and a range of measures to evaluate related correlates consistent with a social–ecological perspective. Forty‐three per cent of respondents reported having at least one moderate‐ or high‐level unmet need. The five highest included needing help with fear about the cancer spreading (17%), concerns about the worries of those close to them (15%), uncertainty about the future (14%), lack of energy/tiredness (14%), and not being able to do things they used to do (14%). Subgroups of women with higher odds of reporting ‘some’ unmet needs across multiple supportive care domains include those who, are not in remission, live with lymphoedema or are unable to work due to illness. Odds were also higher for women who had undergone more recent treatment, and who lived in rural or remote locations. Further assistance with the top specific concerns of gynaecological cancer survivors is recommended. Identified subgroups with higher needs are important targets for support. Copyright © 2007 John Wiley & Sons, Ltd.</div></front></TEI><affiliations><list><country><li>Australie</li></country></list><tree><country name="Australie"><noRegion><name sortKey="Beesley, Vanessa" sort="Beesley, Vanessa" uniqKey="Beesley V" first="Vanessa" last="Beesley">Vanessa Beesley</name></noRegion><name sortKey="Aitken, Joanne" sort="Aitken, Joanne" uniqKey="Aitken J" first="Joanne" last="Aitken">Joanne Aitken</name><name sortKey="Battistutta, Diana" sort="Battistutta, Diana" uniqKey="Battistutta D" first="Diana" last="Battistutta">Diana Battistutta</name><name sortKey="Beesley, Vanessa" sort="Beesley, Vanessa" uniqKey="Beesley V" first="Vanessa" last="Beesley">Vanessa Beesley</name><name sortKey="Dunn, Jeff" sort="Dunn, Jeff" uniqKey="Dunn J" first="Jeff" last="Dunn">Jeff Dunn</name><name sortKey="Eakin, Elizabeth" sort="Eakin, Elizabeth" uniqKey="Eakin E" first="Elizabeth" last="Eakin">Elizabeth Eakin</name><name sortKey="Steginga, Suzanne" sort="Steginga, Suzanne" uniqKey="Steginga S" first="Suzanne" last="Steginga">Suzanne Steginga</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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